Webinars

Physicians, Patients & Rare Diseases on Social Media

Physicians, Patients & Rare Diseases on Social Media

Tue, Jul 26, 2016
2:30pm to 3:30pm CT

Description

In this webinar, Dr. Dearani and Cynthia Burstein Waldman share their stories about using social media and discuss how they have found social media helpful from a physician and patient point-of-view.

Location

In Person

View the webinar on July 26th here: https://socialmedia.mayoclinic.org/discussion/physicians-patients-rare-diseases-on-social-media/

This webinar is free for basic and premium members of the Mayo Clinic Social Media Network.

Questions? Contact:

For more information, email socialmediacenter@mayo.edu

@KimberlyGDATF

Did anyone catch the answers regarding handling inappropriate comments on “alternative” therapies? My feed was stuck at that point, and I couldn’t find it when I tried to replay!

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Research shows that active online support groups are “self policing” Esquivel A, Meric-Bernstam F, Bernstam EV. Accuracy and self correction of information received from an internet breast cancer list: content analysis. BMJ 2006 Apr 22;332(7547):939-942 http://www.bmj.com/cgi/pmidlookup?view=long&pmid=16513686

@KimberlyGDATF

Did anyone catch the answers regarding handling inappropriate comments on “alternative” therapies? My feed was stuck at that point, and I couldn’t find it when I tried to replay!

Jump to this post

Thanks Colleen,

This is interesting. We’ve worked hard for self-moderating community and now seldom have to jump in for inaccuracies in our small rare disease space. With that said, as in my original statement, I still am concerned about …

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