Mayo Clinic Social Media Network
In this webinar, Dr. Dearani and Cynthia Burstein Waldman share their stories about using social media and discuss how they have found social media helpful from a physician and patient point-of-view.
View the webinar on July 26th here: https://socialmedia.mayoclinic.org/discussion/physicians-patients-rare-diseases-on-social-media/
This webinar is free for basic and premium members of the Mayo Clinic Social Media Network.
For more information, email firstname.lastname@example.org
Did anyone catch the answers regarding handling inappropriate comments on “alternative” therapies? My feed was stuck at that point, and I couldn’t find it when I tried to replay!
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Research shows that active online support groups are “self policing” Esquivel A, Meric-Bernstam F, Bernstam EV. Accuracy and self correction of information received from an internet breast cancer list: content analysis. BMJ 2006 Apr 22;332(7547):939-942 http://www.bmj.com/cgi/pmidlookup?view=long&pmid=16513686
This is interesting. We’ve worked hard for self-moderating community and now seldom have to jump in for inaccuracies in our small rare disease space. With that said, as in my original statement, I still am concerned about …
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