Webinars

Physicians, Patients & Rare Diseases on Social Media

Physicians, Patients & Rare Diseases on Social Media

Tue, Jul 26, 2016
2:30pm to 3:30pm CT

Description

In this webinar, Dr. Dearani and Cynthia Burstein Waldman share their stories about using social media and discuss how they have found social media helpful from a physician and patient point-of-view.

Location

In Person

View the webinar on July 26th here: https://socialmedia.mayoclinic.org/discussion/physicians-patients-rare-diseases-on-social-media/

This webinar is free for basic and premium members of the Mayo Clinic Social Media Network.

Questions? Contact:

For more information, email socialmediacenter@mayo.edu

@DanielleThompson

Do you have a job description for the patient mentors on Mayo Clinic Connect and/or admin/moderator of FB Group? Do they complete your regular volunteer training?

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The Moderator and Mentor roles are on Mayo Clinic Connect (not facebook). Here’s the description of the roles, as well as why and how we moderate https://connect.mayoclinic.org/about-our-moderators-and-mentors/

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@DanielleThompson

Do you have a job description for the patient mentors on Mayo Clinic Connect and/or admin/moderator of FB Group? Do they complete your regular volunteer training?

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The mentors are trained and receive ongoing coaching and support. They are also connected to one another through a private moderator and mentors group.

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@colleenyoung

The community leaders and first followers set the tone and culture of the community. Model the behavior you wish to maintain by the members and it is usually respected.

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Cynthia has done an outstanding job at establishing and maintaining a supportive and welcoming group in the HCM Mayo Facebook group. The group is well-informed and the knowledge exchange is remarkable.

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Thanks everyone. Great content today!

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Really enjoyed this. Great presentation and questions.

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Thank You Dr. Dearani and Cynthia!! You both changed my life for the better!
Jill Celeste, Denver, CO
Redo Myectomy Mayo 7/23/14

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This has been a very helpful overview. Thank you to both Dr. Dearani and Cynthia for spending your time educating us on the topic.

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Well said Dr. Dearani!
Great closing remarks from both presenters. Thank you Cynthia and Dr. Dearani.

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Thanks, all – great program!

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This was great, thanks!

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Thank you very much to share your experience in this webinar. Have a nice day!

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Thanks, all!

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Thank you Dr. Dearani, Cynthia, Lee and Colleen for taking the time to deliver a very informative webinar on this subject matter.

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Did anyone catch the answers regarding handling inappropriate comments on “alternative” therapies? My feed was stuck at that point, and I couldn’t find it when I tried to replay!

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@KimberlyGDATF

Did anyone catch the answers regarding handling inappropriate comments on “alternative” therapies? My feed was stuck at that point, and I couldn’t find it when I tried to replay!

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The short answer was: discussions about alternative therapies are happening off and online, better to have them in vetted, moderated communities where expert opinion and educated peers can correct misinformation than not to participate in them.

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