Webinars

Physicians, Patients & Rare Diseases on Social Media

Physicians, Patients & Rare Diseases on Social Media

Tue, Jul 26, 2016
2:30pm to 3:30pm CT

Description

In this webinar, Dr. Dearani and Cynthia Burstein Waldman share their stories about using social media and discuss how they have found social media helpful from a physician and patient point-of-view.

Location

In Person

View the webinar on July 26th here: https://socialmedia.mayoclinic.org/discussion/physicians-patients-rare-diseases-on-social-media/

This webinar is free for basic and premium members of the Mayo Clinic Social Media Network.

Questions? Contact:

For more information, email socialmediacenter@mayo.edu

Thank you, Colleen. Do you know if any clinicians participate in it, or if it’s strictly patient-moderated, like by Cynthia? Thanks again.

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Lost sound. Just me?

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Nevermind. Got it back.

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@sueannecassidy

Thank you, Colleen. Do you know if any clinicians participate in it, or if it’s strictly patient-moderated, like by Cynthia? Thanks again.

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Connect is monitored by a community management team (community director and moderators). Patient mentors participate in the discussions. Mayo medical experts participate in a variety of ways: webinars, Q&As and blogs. When necessary expert opinion will be brought into the patient-to-patient discussions, such as here: https://connect.mayoclinic.org/discussion/my-37-yr-old-son-will-need-a-liver-im-64-could/

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Do you ever get posters trying to push unproven “alternative” therapies on the Facebook page? If so, do you try to engage these individuals – or simply delete the comments?

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Thanks again!

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One of the challenges of social media is that typically there are a few dominant voices with powerful opinions (we all tend to either love or hate our patient-doctor-hospital experience) and that taints the messaging. We want to trust our docs and tend to fall in love with them and their methods (when we have a good experience) as they bring us care … and hope.

Sometimes the first message beings a lot of “me too’s” making those with other opinions feel they are not “politically correct” if they have a contrary opinion.

Often the more middle of the road comments, which can be the most insightful, are often not posted or the poster feels too timid in the forum with loud dominant voices.

How do we overcome these group dynamics to being a full breadth of voices and experiences?

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Speaking of Screen Shots – Here’s an example of how someone can be “outed” in SoMe when they think is safe. (Not judging here, just an observation).

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Do Mayo employees participate in the Facebook group? If so, have they had issues participating from their personal accounts, since FB won’t allow Pages to be group members?

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Good Question, Kimberly! In the case of “new” treatments – who moderates for accuracy? Is there a policy of how a treatment must be vetted before posting or is it Caveat Emptor?

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Is there a way to “like” or “vote up” some of these comments?

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@Janet Kennedy – I’m not seeing the screen shot, but privacy is definitely a concern. I’ve seen complaints posted to Facebook from people whose posts to Closed groups somehow ended up in the newsfeed of friends who were *not* members!

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Will there be a point in this webinar where the questions that are being posted are going to be addressed/answered?

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@nadiabodkin

Will there be a point in this webinar where the questions that are being posted are going to be addressed/answered?

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Hi, Nadia. Yes! Once Cynthia is done presenting, we will have a Q&A session.

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@nadiabodkin

Will there be a point in this webinar where the questions that are being posted are going to be addressed/answered?

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Yes. Nadia. Q&A will start shortly. Please post your question here.

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