Webinars

Physicians, Patients & Rare Diseases on Social Media

Physicians, Patients & Rare Diseases on Social Media

Tue, Jul 26, 2016
2:30pm to 3:30pm CT

Description

In this webinar, Dr. Dearani and Cynthia Burstein Waldman share their stories about using social media and discuss how they have found social media helpful from a physician and patient point-of-view.

Location

In Person

View the webinar on July 26th here: https://socialmedia.mayoclinic.org/discussion/physicians-patients-rare-diseases-on-social-media/

This webinar is free for basic and premium members of the Mayo Clinic Social Media Network.

Questions? Contact:

For more information, email socialmediacenter@mayo.edu

Post your questions for Dr. Dearani and Cynthia here!

How are Patients finding you? Search? Physician recommendation?

How do you balance “medical speak” with average middle-school reading levels?

Could Cynthia turn off her speakers? There is an echo.

Her speakers are on.

Do you have a closed Facebook page (like a discussion group) for your patients with a particular condition? If so and you participate in that page, did you or Mayo ever have any concerns re: liability (re: patients considering your page content to be medical advice)?

@sueannecassidy

Do you have a closed Facebook page (like a discussion group) for your patients with a particular condition? If so and you participate in that page, did you or Mayo ever have any concerns re: liability (re: patients considering your page content to be medical advice)?

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Sue, patients can share their experiences and connect with one another on Mayo Clinic Connect https://socialmedia.mayoclinic.org/discussion/physicians-patients-rare-diseases-on-social-media/

Can someone ask her to use earphones?

All the contents of the Facebook page are opened to all the audience of the social media network? Is there in you country any concern with the publication of health information (such as a diagnostic) in this kind of sites on the Internet?

@sueannecassidy

Do you have a closed Facebook page (like a discussion group) for your patients with a particular condition? If so and you participate in that page, did you or Mayo ever have any concerns re: liability (re: patients considering your page content to be medical advice)?

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Mayo Clinic Connect is for Mayo patients and non patients alike. Here is the Heart group https://connect.mayoclinic.org/group/heart-blood-vessel-conditions/ Cynthia is an active mentor in this group.

my streaming is frozen

Sound is better whatever was done.

much better sound now!

@jillc

my streaming is frozen

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Hi, @jillc. If you try refreshing your window, the stream should start again.

@bnafria

All the contents of the Facebook page are opened to all the audience of the social media network? Is there in you country any concern with the publication of health information (such as a diagnostic) in this kind of sites on the Internet?

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Begonya – individual patient information is not shared on the Facebook page. Dr. Dearani’s department shares patient education information to help prepare for appointments, choose a facility, etc.

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