How Mayo Clinic’s Patient Community Changes Health Care and Advances Science

Thu, Jan 17, 2019
2:00pm to 3:00pm CT


Patient online communities not only reduce isolation and anxiety when faced with a life-changing diagnosis, they can also improve health outcomes. As Community Director of Mayo Clinic Connect, Colleen Young wanted to do more than connect patients. She involved the Mayo Clinic enterprise: providers, managers, communications specialists, researchers, and frontline staff; demonstrating how they can learn from and engage with the patient community to:

  • Improve health care and service delivery
  • Discover champions
  • Increase brand loyalty
  • Educate health care providers
  • Co-create patient education
  • Change poor health behaviors
  • Advance science

You’ll learn how you can excite internal stakeholders up, down, and across your organization to recognize the value of the community and understand how they can harness it to help them do their work better. Thriving communities get stuff done.

Link to the presentation slides on SlideShare.

About Colleen Young Young

Colleen Young is the Community Director of Mayo Clinic Connect, a virtual community connecting patients with each other and to Mayo Clinic medical expertise. As an internationally recognized expert in building online patient communities that thrive, she frequently speaks about communicating the experience of illness in the digital age and the social web’s impact on participatory medicine, including at Stanford Medicine X and Mayo's Health Care Summit in Australia #MayoInOz. Colleen is a “tenacious connector of patients."



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Thank you for archiving this webinar. I was caught up with some caregiving responsibilities at the time. Patient communities have been my passion for a long time. I am the founder of an online patient community that is now 50,000+ strong. There is always something to learn. Just like peer-to-peer sharing for patients, there is always something to learn from peer-to-peer for online patient community builders.

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Hey @lyndagmitchell, please post the name of your community and a link. I'd love to learn more about it. It's not self-promotion but sharing of valuable resources.

I learn a lot from fellow online community builders like @rozeiger (SmartPatients) @johnnovack (Inspire) @michellehp (Heart & Stroke Foundation) and so many others. I also go outside of health to learn. Have you heard of Feverbee? Or the Community Roundtable? Or CMX? Happy to provide links if you're interested.


@colleenyoung I founded http://www.kidswithfoodallergies.org back in 2005. It's still going and growing after all of these years. I am now working on other things and left the community in the good hands of a capable community strategy team. I've been a follower of Feverbee and Rich Millington for a number of years – attended one of his conferences in San Fran a few years ago. I remember reading his case study about Mayo a year or so ago. 🙂 I'm not actively involved in community management at present, though it's still a passion of mine, especially for patient communities. Another good resource is Rachel Happe at the Community Roundtable.

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