How Mayo Clinic’s Patient Community Changes Health Care and Advances Science

Thu, Jan 17, 2019
2:00pm to 3:00pm CT


Patient online communities not only reduce isolation and anxiety when faced with a life-changing diagnosis, they can also improve health outcomes. As Community Director of Mayo Clinic Connect, Colleen Young wanted to do more than connect patients. She involved the Mayo Clinic enterprise: providers, managers, communications specialists, researchers, and frontline staff; demonstrating how they can learn from and engage with the patient community to:

  • Improve health care and service delivery
  • Discover champions
  • Increase brand loyalty
  • Educate health care providers
  • Co-create patient education
  • Change poor health behaviors
  • Advance science

You’ll learn how you can excite internal stakeholders up, down, and across your organization to recognize the value of the community and understand how they can harness it to help them do their work better. Thriving communities get stuff done.

Link to the presentation slides on SlideShare.

About Colleen Young Young

Colleen Young is the Community Director of Mayo Clinic Connect, a virtual community connecting patients with each other and to Mayo Clinic medical expertise. As an internationally recognized expert in building online patient communities that thrive, she frequently speaks about communicating the experience of illness in the digital age and the social web’s impact on participatory medicine, including at Stanford Medicine X and Mayo's Health Care Summit in Australia #MayoInOz. Colleen is a “tenacious connector of patients."



Questions? Contact:



@colleenyoung Does Mayo Clinic Connect exist on a web site? Is that site secure/encrypted? Or are these living on social media? I wondered because you mentioned data security…I manage social and, as you know FB has had some slips with privacy this year.

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Yes, it's Web – here's the top level URL https://connect.mayoclinic.org/


Thank you, @colleenyoung. I've come away with lots of info and inspiration.


@colleenyoung any examples of OPCs influencing new models of care or redesign of Mayo healthcare delivery?

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Does Mayo ever let anyone anywhere see any of the data about patients?


Will this be archived to watch later?


Thanks for a great session! Worth the early morning wake-up!


Thanks to @colleenyoung and @mayoclinic for sharing your experiences today! can you share the citations of the articles that discuss this project


Thanks @colleenyoung wonderful presentation and no technical hiccups! 🙂


Thanks Colleen (and Lee) — Great job, as usual.


@colleenyoung Do you have a sense of when people join? At initial diagnosis, during treatment or when treatment ends?


Thank you so much. This has been terrific and really drives home the sense of community and it's goals. Please with future webinars would you kindly make sure that the CC is available.I couldn't make out some of what Colleen said, maybe because of her accent! Great job!


@DanHinmon I'm also interested in the free 2 month premium membership. Thanks


great job thank u


Wonderful webinar @colleenyoung @LeeAase @DanHinmon one of my key takeaways: creating a safe space and welcoming both conversations of successes and failures/challenges. Thanks for sharing your wisdom

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