Hospital Sponsored Online Patient Support Groups

Hospital Sponsored Online Patient Support Groups

Tue, Jan 31, 2017
2:00pm to 3:00pm CT


Presented by Ed Bennett, Janet Gripshover, Nurse Practitioner at University of Maryland and Colleen Young, Community Director of Mayo Clinic Connect.

A few years ago, Ed Bennett helped hospitals adopt social media with his Hospital Social Media List. Now he's looking at how hospitals use digital tools for patient support groups (and building a new list!). Janet Gripshover founded one of the first hospital-sponsored, facilitated, online support groups back in 2011. Colleen Young manages Connect, Mayo's open patient-to-patient online community, also established in 2011.

Learn more about:

  • What is a hospital sponsored patient support group
  • The platforms hospitals use to host their support groups
  • Open, semi-open and closed groups
  • Examples of robust, successful groups drawn from his list
  • A look at the next generation of platforms
  • The decision on closed vs open access
  • The onboarding process for new members
  • What a typical week is like for a group manager
  • Challenges and success stories


In Person

This webinar is free for both Basic and Premium Members of the Mayo Clinic Social Media Network.

Questions? Contact:

Questions? Email socialmediacenter@mayo.edu.

Thank you for all your questions. I have to run to a meeting, but I will answer your questions in an hour.

Thank you, my first webinar here and I’m grateful. Thanks Ed, Janet and Colleen. About the research, would you send it to us via of our email registered here at Mayo?

Thanks everyone. Great webinar, look forward to more information shariing

For anyone considering to start an online patient community, you may be interested in this paper/tutorial:

Community Management That Works: How to Build and Sustain a Thriving Online Health Community

Great presentation! Thanks Colleen, Ed and Janet.

Very helpful, thank you!

Strictly moderating hours for our team of 5 range from 50-100 hours/week, but community management is much more than just moderation. Our work includes strategic development, volunteer management, marketing, HCP consultations, platform improvement development, reporting, and much more.

@chrisboyer – It’s important to first consider that motivation of people to participate in a patient community. It is usually to connect with others, to meet someone “like me”. While we encourage clinical participation in Connect’s patient-to-patient conversations, we offer guidance on how to do so without risk of shutting down conversations. A leading authority can change the dynamic of a conversation among patients.

@marksbetteridge On Connect, we also have people who participate as family members and family caregivers.

@nicnic You can read more about Connect moderators and mentors, the roles of each, and criteria here: https://connect.mayoclinic.org/about-our-moderators-and-mentors/

The webinar is archived for future viewing at any time.

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