rare diseases

When our first daughter Eliza was born she was absolutely beautiful and seemed perfect in our eyes.

After about a week her skin became sallow. We suspected jaundice, so we did what every good parent did at the time in these cases. We stripped off her clothes and placed her safely on the [...]

By Dan Hinmon, MCSMN Director • June 11, 2019
On July 26, 2016, we hosted a webinar with Dr. Joseph Dearani, chair of the Division of Cardiovascular Surgery at Mayo Clinic, and a patient, Cynthia Burstein Waldman. Although our webinars are generally limited to premium members, we open three webinars each year to basic members and the public as [...]
By Dan Hinmon, MCSMN Director • April 10, 2017