Items Tagged ‘patient advocacy’

June 1, 2018

The Choice and Challenge of Being “Good Enough”- A Caregiving Story – Experts by Experience

By Scott, Volunteer Mentor IndianaScott

Caregiving arrived without fanfare on her birthday–a June day in 2002–when my wife was diagnosed with brain cancer. It was in one of the small consultation rooms that I first heard the word ‘caregiver’ as my wife lay in a coma in the ICU, while I vacillated between being brave and despondent. There was no […]

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Tags: caregivers, patient advocacy

May 31, 2018

Maintain Your Social Media Presence in 10 minutes a Week

By Lee Aase, Director, Mayo Clinic Social Media Network LeeAase

Mayo Clinic’s social media advocacy platforms obviously are good for increasing Mayo’s visibility online. But what’s in it for you as a user? If you’re a Mayo booster—whether as a grateful patient or a member of the professional or allied health staff—supporting Mayo Clinic in its mission is gratifying and may be motivation enough. Or […]

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Tags: Advocacy, Buffer, employee advocacy, patient advocacy, Twitter

May 24, 2018

Using Mayo Clinic’s Advocacy Platform

By Lee Aase, Director, Mayo Clinic Social Media Network LeeAase

Through Mayo Clinic’s new social media advocacy program we make it easy for both patients and staff to share helpful news and interesting stories related to Mayo Clinic with their online connections. In the Champions Newsfeed that is part of the Mayo Clinic Champions program on our Mayo Clinic Connect patient community, we gather interesting […]

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Tags: employee advocacy, patient advocacy

May 22, 2018

Developing a Patient and Staff Social Advocacy Platform

By Lee Aase, Director, Mayo Clinic Social Media Network LeeAase

It’s not news to anyone working professionally in social media that organic reach for brands has been declining for several years. Whereas previously a large percentage of Facebook or Twitter followers would see any particular post on a brand page or account, today that reach has declined to something in the 1-3 percent range. Great […]

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Tags: employee advocacy, Facebook, patient advocacy, Twitter

May 18, 2018

Redefining My Life’s Purpose…in a Recliner – Experts by Experience

By Shani Weber shaniweberehlersdanlossociety

Ever since I was a young girl I knew I wanted to be an Early Childhood Special Education teacher. My self-identity was being a teacher and my purpose was teaching. My life was going as planned—until it wasn’t. Joint pain and dislocations became more frequent, I worked fewer and fewer hours, and my focus shifted […]

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Tags: Ehlers-Danlos Syndrome, experts by experience, patient advocacy

May 4, 2018

Learning to Trust Again – My Journey with Drug Intolerance – Experts by Experience

By Kelly, Alumna Mentor kdubois

My health journey began a dozen years ago, with a spiral that left me feeling I was slowly dying despite the involvement of 20 doctors across two of my hometown medical centers. My ever-growing list of symptoms included constant weight gain, body aches and pains, unexplained profuse sweating, an enlarged and painful liver, swollen lymph […]

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Tags: patient advocacy

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