Items Tagged ‘Online community’

July 3, 2019

Building Community: Social Media as the Glue

By Jess Lewis jesslewis422

and Jenn Shafer Jess Lewis and Jenn Shafer will present “Community & Collaboration: Building a Cohesive Culture Inside & Out” at the Mayo Clinic Social Media Network 2019 Annual Conference. To learn more from Jess, Jenn, and other expert speakers, please join us! You’re not an island – even as a team of one, you can build relationships […]

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Tags: Community Development, Online community


January 15, 2019

Shifting the “Privacy Calculus” for the Patients Online

By Colleen Young, Connect Director colleenyoung

For many people, sharing about their health online overrides conventional concerns about privacy. Each person weighs the benefits and risks arriving at their own “privacy calculus”. Patients and caregivers who share about their health in online communities told me that they agree with Alan Westin’s concept of privacy: The right to privacy is the individual’s […]

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Tags: Online community, patient community, patient data, privacy, security


September 13, 2018

Don’t Let These 3 Common Fears Stop You from Creating a Vibrant Patient Community

By Colleen Young, Connect Director colleenyoung

Colleen Young will present “How Mayo Clinic’s Patient Online Community Changes Health Care and Advances Science” at the Mayo Clinic Social Media Network 2018 Annual Conference. To learn more from Colleen and other expert speakers, please join us! Have you considered an online patient community but have hesitated because concerns about misinformation, misbehavior, and safety seem insurmountable? As we’ve […]

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Tags: Online community


April 17, 2018

Volunteer Mentors: The Secret Ingredient for Success of an Online Community

By Colleen Young, Connect Director colleenyoung

When Connect, Mayo Clinic’s online community for patients and families, started to grow in numbers and activity, I knew we needed to prepare for scalability. Connect is managed by a team of community moderators, who keep the community safe, respectful, trustworthy, and inclusive. While moderation is vital, there’s a lot more to strategic community management […]

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Tags: community moderators, mentors, Online community, volunteers


April 27, 2016

“Is anyone there?” Is your online community a ghost town?

By Colleen Young, Connect Director colleenyoung

“Well it’s discouraging to find that after three months and 126 views of my post, not a single person made the effort to write a single supportive word.” ~ from a member of an online cancer community What a heart-wrenching post to see on an online patient forum! Nothing spells the demise of a community […]

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Tags: #MCSMN, Colleen Young, Cynthia Elliott, member meeting, Online community


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