#ExpertsbyExperience

The online patient community, Mayo Clinic Connect, together with health care social network Inspire, have released the second free ebook––Experts by Experience 2019: Patient Stories that Teach––a compendium of patient and caregiver stories published in 2019 on the Mayo Clinic Social Media Network. 

The goal of this eBook [...]

By Kanaaz Pereira • February 27, 2020

My story begins at a time when there was little information about celiac disease, and when going gluten-free was a trend or a lifestyle choice.

As leader of the Mayo Clinic media relations team 15 years ago, I became aware of how patients were increasingly using blogs, discussion boards, and other social networking [...]

By Lee Aase • December 20, 2019

First Encounter

I was 48 years old when I first encountered serious illness – I was diagnosed with breast cancer. It came as surprise since no one in my family had breast cancer. I needed a mastectomy and underwent six months of chemotherapy – the toughest 6 months in my life! [...]

By Ingegerd Enscoe, Volunteer Mentor • December 6, 2019

In 2001, at the age of three, my primary focus in life was watching Powerpuff Girls–and keeping my one-year old brother from drooling on my collection of stuffed animals. Not surprisingly, I didn’t notice when my dad started acting strange. Even my mom was unconcerned at first–his personality changes seemed trivial enough.

Usually an [...]

By Taylor Kane • November 18, 2019

January 2014–After three years of being treated for pneumonia, at age 35, with five children and an insignificant medical history, I learned that I had a weird-named disease–scleroderma, which had no cure. I also learned that I would need a double lung transplant. 

Fast-forward to September 2016–I was admitted to a university hospital in [...]

By Lia Young RN • November 1, 2019

“Dad was in ER today,” my mother-in-law told me in her native Korean.

A week ago, while at work, Dad (a.k.a. my father-in-law) had bumped his head hard. It was only when he had to sit down because he felt a sudden coldness on his head, that he drove – after [...]

By Soojin Jun • October 18, 2019

What if I told you the hardest thing about living with a genetic bleeding disorder, like hemophilia, isn’t the joint damage, the surgeries or any of the other physical hurdles? What if I told you, what “hurts” the most is going through a lifetime worth of struggles, disappointments, obstacles, and being told no! The [...]

By Justin McClanahan • October 4, 2019