Results for search term "experts by experience".

EDITORIAL

Empathetic Doctors Make Empowered Patients - Experts by Experience

“So, tell me what’s been going on, Chris.” I watched intently as my neurologist – who I had only met thirty seconds before – settled into his chair in the exam room. Upbeat and cheerful, he had a smile on his face, which is just what I needed at that… [...]

EDITORIAL

When the Fearful become Fearless - Experts by Experience

The drip-drip-dripping of the sink in the radiology room echoed loudly in my brain as I waited for the pathologist. I just had a biopsy done for two spots on my neck—one suspected to be cancerous. “A nodule,” my primary care physician had previously explained at my annual physical. The… [...]

EDITORIAL

Hope for the Best, and Plan for the Worst--Experts by Experience

Life, as I knew it, was crashing down. I was sitting with my wife in the oncologist’s office and had just been diagnosed with stage 4 pancreatic cancer. But, I was about to experience some of the most optimistic and hopeful words I had ever heard. My doctor could have… [...]

EDITORIAL

If Remission is the Goal, Why Do I Still Feel Bad? Experts by Experience

Photo Credit: Wisdo Everyone always talks about being sick. My life took an unexpected turn after I was diagnosed with inflammatory bowel disease (IBD). I was lost, trying to navigate the nature of this new disease, this new identity, in a new college where no one seemed to understand. So,… [...]

EDITORIAL

A Good Night's Sleep - Experts by Experience

I was diagnosed with lymphedema last year, while undergoing treatment for pain and swelling issues with my right ankle, knee, and leg. After going over the examination and test results, the doctor asked me about my sleep quality and habits. I didn’t think much about it at the time—I was… [...]

EDITORIAL

Hope: A Strategy for Managing Chronic Disease--Experts by Experience

Time is one of the most priceless gifts we all have, but which can be robbed in an instant from those of us with chronic illness and disease. From diagnosis and prognosis, to the time it takes to cope with symptoms, we are instantly required to shift our thinking to… [...]

EDITORIAL

Accidental Path to a Cancer Cure - Experts by Experience

Incontinence was a major problem for me 15 years ago. Guiding my cousins around the National Mall in Washington D.C. one day, I had to find a restroom for urinary relief several times. Later, we remembered that my father had developed incontinence from benign prostatic hypertrophy or BPH—overgrowth of the… [...]

EDITORIAL

Don't Forget Us! Young Adults with Invisible Illness - Experts by Experience

My brain swirled as I waited on the surgery table for my colectomy, the removal of the entire large intestine. I told the anesthesiologist I was ready for him to start the sedation, knowing this is an irreversible surgery, but also knowing I would come out with a new life.… [...]

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