Nope, participation is free 🙂 The conversation will also archived on YouTube. We’ve done a few conversations already about blogging … and February we will talk about impacts of ACA .. all conversations by patients providing patient perspectives …
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Jan 19, 2017 · Patient Health Literacies - a Virtually Connecting ePatient Conv. in Share
Join (or watch) myself @MarieEnnisOConnor and others to discuss what health literacy means from a patient perspective – January 25, 10am PST online – Current definitions are focused on what health providers need from patients, rather than what patients need from both healthcare providers and each other. This will be an international discussion with representation from Canada, USA, South Africa, Ireland and perhaps more. For more info see: http://epatients.virtuallyconnecting.org/2017/01/16/epatient-health-literacies/
Jul 17, 2016 · Making the private public: Why we blog about illness in Share
Just wanted to let everyone know about an online Google Hangout on Air happening on Thursday among a bunch of ePatient bloggers. We will be taking about why we chose to blog – and why we share some intimate/private health details on the public internet. This is in part a reaction to some conference presentations I attended where researchers who were both not ill and were not bloggers were trying to guess as to why people would chose to blog about illness. It will be broadcast live and will be archived for viewing later – information is available here: http://virtuallyconnecting.org/announcements/making-the-private-public-why-we-chose-to-blog-a-vcept-discussion/
I’m happy to answer any questions you might have. In future weeks we’ll be talking about a variety of digital health literacies – and how these apply to ePatients and those who provide any form of patient education or anyone who wants to better understand the ePatient experience.
Jul 11, 2016 · Review a book chapter "Use of SM by hospitals & health authorities"? in Share
I’m not sure I’d agree that MOOCs are an appropriate space for sharing patient stories unless there was a specific pedagogical reason for doing so. MOOCs (at least the more popularized versions of MOOCs post Stanford AI course) are much more about shoveling content at anyone willing to watch and less about actual teaching or learning. They work great for those who are already highly educated and those who are highly motivated to participate in that type of self-study (clearly you can read my bias in my statements here).
IMHO they (MOOCs) aren’t really the right space for patient stories (the older less structured connectivist-style MOOCs might make a good space, but that implies a critical mass of participation from both patients and those who WANT to hear what they have to say). The folks at Stanford Medicine X did incorporate some patient stories into their MOOCs (e.g. the MOOC on patient engagement design) – the problem was that they didn’t serve a pedagogical purpose and felt like patients were being given space to speak but were not listened too. Patients were given 5 minute ignite talks while med tech start ups were given 20 minutes to pretty much sell their products. The balance was off – but that is another issue.
I think this is a really important move, and will really help to legitimatize the role social media is playing in healthcare today. I’m interested to watch how this plays out, but also what other organizations follow this path.