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Thu, Feb 27 9:02am · Experts by Experience: Second Free eBook Released

The online patient community, Mayo Clinic Connect, together with health care social network Inspire, have released the second free ebook––Experts by Experience 2019: Patient Stories that Teach––a compendium of patient and caregiver stories published in 2019 on the Mayo Clinic Social Media Network. 

Experts by Experience 2019 ebook

The goal of this eBook is twofold:

  • Create a collection of patient and caregiver narratives that might help others going through similar experiences.
  • Provide a rich learning experience for healthcare professionals so that they can deliver better patient-centered care.

These stories provide vital insights from patients’ perspectives. You will read about the real-life experiences and personal journeys of people during some of their most vulnerable and challenging times. You will gain insight into patients’ needs, their beliefs and concerns, and how this knowledge can help healthcare professionals improve patient engagement, communication and facilitate care decisions with patients as partners––all of which goes a long way towards healing.

This compilation is described as “Stories that Teach” because patients and caregivers teach us to find meaning in the loss of health, and to explore the potential of healing medicine that is grounded in personal experience. For health providers, and those in health communication and administration, these narratives help pave the way for creating a health care culture that values compassion and inspires shared decision-making between patients and their health providers. As you read these stories, you will recognize a simple truth in the variety of emotions and voices of the authors: “What matters to me is being heard, being taken seriously. I want to know what the doctor knows…or doesn’t know. And, I want to have a voice in the decisions made about me.”––member, Mayo Clinic Connect.

Download the Experts by Experience 2019 ebook (pdf).

Jan 30, 2018 · Experts by Experience - What Patient Narratives Tell Us

The world is shaped by stories. As experts in our own lives, we all have something to share, and the pivotal role of shared experiences has been well-established in improving health outcomes. On February 2, Mayo Clinic, and health care social network Inspire will launch “Experts by Experience” – a series of articles written by patients and caregivers from around the world.

Sharing stories has valuable health benefits for readers or listeners, and narrators alike. Be it through their own experiences or those of loved ones, patients and caregivers are in a unique position – by sharing their stories they are able to create a comprehensive narrative out of often chaotic journeys, and unburden the overwhelming feeling of isolation. For readers, learning about hard-won experiences not only informs, but offers hope and a sense of connection.

A main purpose of the Experts by Experience series is to bring the patient perspective to people who can learn from these experiences – health care providers, and those in communications and administration. Our hope is that reading these stories will:

  • educate and inform about lived experiences through first-hand accounts
  • paint a picture of the “day in the life” of a particular patient/caregiver reality
  • learn and discover opportunities for quality improvement

In addition to garnering the patient perspective outside clinical care, medical professionals may discover how they can improve their communication skills and practice. Social media professionals and those in health care communications will learn how to write more effectively for their target audience of patients and consumers.

Experts by Experience will feature members of Inspire and Mayo Clinic Connect, which are online support communities for patients and caregivers that connect over 1 million people. Contributors to the series have received care from centers and organizations in various health systems around the world.

The articles appear bi-monthly on the Mayo Clinic Social Media Network blog. Search for the tag #ExpertsByExperience.

Life is a story…what does yours say?