Sorry to miss this call I will be on vacation. I look forward to future meetings. Thanks Dan Linda Hageman
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Mon, Sep 2 8:13am · Are you managing a non-profit? We're organizing a group to help in Give & Get Advice
It is very to monitor this. I have a problem with a splinter group using our info, but I just figure that since that FB grp. has a lot of inaccurate info, that if they take something from us at least their members are getting some accurate info. What I do have a problem with is the admin. of this group makes up fake names and PM's all of our new members and spouses. Linda Hageman, RN
Sun, Jul 7 9:59am · Are you managing a non-profit? We're organizing a group to help in Give & Get Advice
Board development and engagement, Grants, Fundraising
Fri, Jul 5 9:35am · Are you managing a non-profit? We're organizing a group to help in Give & Get Advice
I Agree Please join our group. You have a lot to offer non profits. We use Facebook and Twitter and also have our own website http://www.AMENSupport.org
Thu, Jul 4 9:21am · Are you managing a non-profit? We're organizing a group to help in Give & Get Advice
Hi Allison Linda Hageman here. I am the Executive Director and Founder of American Multiple Endocrine Neoplasia Support or http://www.AMENSupport.org. I take no salary for the work I do, however many non profits hire a Executive Director once they are up and running and have the funds to do so. Would love to speak to you if you will email me Linda.Hageman@AMENSupport.org perhaps we can arrange a phone call.
What an exciting ZOOM call we had yesterday. Hoping to connect on a regular monthly basis. My email address is Linda.Hageman@AMENSupport.org so feel free to contact me anytime. I am very passionate about Rare Diseases and getting the word out to the public. I also have a FB Grp. called American Multiple Endocrine Neoplasia Support c'mon over and join if you iike. We have a very unique way of handling our FB Grp. The group is monitored by medical individuals to ensure actural, factural and up to date medical information. If something is posted which is inaccurate or old information it is deleted and we send a PM to the individual explaining why the post was deleted, and try to post an updated article with the correct info. Hope to see you all again soon. Linda
Hello everyone I am still the Founder and Executive Director for American Multiple Endocrine Neoplasia or AMENSupport.org I would be interested in sharing the highs and lows of the non proifit world. Would be interested in a monthly meeting or webinar as I am sure many non profits are found through Mayo Clinic. Linda Hageman