Dan Hinmon, MCSMN Director

Posts: 2918
Joined: Apr 13, 2011

Engaging Patients with Rare Diseases in Online Community Research

Posted by @DanHinmon, Aug 10, 2015

When Cello Health insight reached out to patients with a rare blood disease, they expected to find them eager to participate and connect with others in an online community. Instead, they discovered that almost all were already well connected to a network of family members, physicians and other patients with the same rare condition. What were their key engagement tactics to build participation?


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