JCCO Article : Developing Hashtag Collections for Communities

Posted by Women of Teal @womenofteal, Jul 5, 2019

I thought some members might be interested in this newly published article:
Organizing Online Health Content: Developing Hashtag Collections for Healthier Internet-Based People and Communities [Jun 28, 2019] by Matthew S. Katz, MD; Patricia F. Anderson, MILS; Michael A. Thompson, MD, PhD; Liz Salmi; Janet Freeman-Daily, MS; Audun Utengen, MBA; Don S. Dizon, MD; Charlie Blotner, MSW; David T. Cooke, MD; Dee Sparacio, MS; Alicia C. Staley, MBA, MS; Michael J. Fisch, MD, MPH; Colleen Young; and Deanna J. Attai, MD
"Twitter provides many opportunities for patients, physicians, and health care professionals to come together to share high-quality, evidence-based information."

hashtag communities

Thanks for sharing this @womenofteal. I see at least 3 MCSMN members among the contributors: @mattkatz @pfanderson @colleenyoung. Can you share a link to the article? Matt, Patricia and Colleen – any back story you want to share here?


Sorry I am catching up with sharing info about the article after being away for a few weeks. Here is a link to the open access article
As #gyncsm co-founder it was an honor and pleasure to work with Matt and so many other active Twitter cancer communities to examine the benefits and possible drawbacks to these supportive communities.


Thanks for sharing! Here's our Visual Abstract for it. I should really do a talk or something on Visual Abstracts, what they are, how to make them, resources, guidelines, best practices, and how they support social media in science communication.



Thanks for sharing this @womenofteal. I see at least 3 MCSMN members among the contributors: @mattkatz @pfanderson @colleenyoung. Can you share a link to the article? Matt, Patricia and Colleen – any back story you want to share here?

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Hi, Dan! This all started (cancer "tag ontologies"/tag collections) when Matt and I were both on the Board, and has been growing and morphing ever since. As use grows, we're trying to document evidence to show if and how it makes a difference for people. The big findings for patients are community and support. The big findings for academics is reducing spam.


I've always wanted to more broadly think through hashtags more broadly as an ontology tool as this article describes, so this is a great share – thanks. I think we underestimate ( for better and worse) what a hashtag actually is. For example, in some political scenarios, I think hashtags can actually be used as a weapon, and is social issues, it could be a tool for the community, or possibly a tool to bully others ( for example, by negatively tweeting someone's tweet with a highly active hashtag base).

As an aside, that's why I do my best to avoid even faintly politically-associated hashtags, even if I do believe in the specific movement. Anyway, digitally, what is the difference between a mob and a community? (Theoretically, I think it has something to do with structure, but I haven't really thought this through yet…)

I wonder how this ties into Symplur? https://www.symplur.com

One interesting comment hidden in the article: " Currently, searching for content with a specific hashtag does not risk the loss of privacy, but once content is tweeted with it, one can be monitored and tracked ".

For example, how wonderful will it be for Amazon to help target ads to you (or better yet, your spouse and family) on your Amazon Prime account if they also know you possibly have #pancsm? I also wonder if/when we lose pre-existing coverage to what extent insurance companies will mine these hashtags?

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