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Jun 17, 2013 · 10 Replies

Helping Patients Bear the Burden of Treatment

By Lee Aase, Director, Mayo Clinic Social Media Network @LeeAase

Dr. Victor Montori was the Medical Director for our Mayo Clinic Center for Social Media when we launched it, and when he stepped aside two years later Dr. Farris Timimi succeeded him in that role.

But Dr. Montori remains committed to using social media tools to empower and engage patients. As you will see from this presentation at our Mayo Clinic Transform conference, Dr. Montori is passionate about helping patients deal with the burden of disease, and particularly in managing time-consuming treatments. As he says, for patients with multiple diseases and conditions, following all of their doctor’s treatment prescriptions can be “the equivalent of a part-time job.”

http://www.youtube.com/watch?v=flcRKdoaiVk

Dr. Montori is collaborating with colleagues internationally on a Burden of Treatment study. There are two ways you can help:

  • If you’re a patient who has been dealing with a chronic condition such as high blood pressure, diabetes or chronic obstructive pulmonary disease, please answer a short survey.
  • If not, please share this post on Facebook, Twitter or LinkedIn and encourage those in your social networks to join.

We're excited to be able to play a role in helping Dr. Montori and his colleagues look for ways to help patients manage the "extra job" they have in coping with chronic conditions. Please join us.

Tags: Burden of treatment, COPD, diabetes, ISDM, Montori

jndewitt

Posted by @jndewitt, Jun 20, 2013

I would like to do the survey for this but the link to it will not open.

Posted by @LeeAase, Jun 20, 2013

You went here

https://burdenoftreatment.com/eng/questionnaire.php

And it didn't open? It works for me...

steph23

Posted by @steph23, Jul 11, 2013

Hi. I also could not open the survey link, and the link you provided doesn't seem to open either! Help, anyone?! Thanks, Steph

Posted by @LeeAase, Jul 12, 2013

What do you see when you go here? https://burdenoftreatment.com/eng/questionnaire.php I see a page where you then get to click Next and move into the survey after completing the consent form here: https://burdenoftreatment.com/eng/consentement.php

Does that work for you?

aba64

Posted by @aba64, Jun 26, 2013

I need help ---I was told I have Lupus Vasuclitus about 12 yeARS AGO. i HAVE BEEN ON pREDISONE SINCE. i HAVE GAINED WEIGHT--IS HERE ANY DIET i COULD GO ON CONSIDERING MY CONDITION?

mra1614

Posted by @mra1614, Jun 27, 2013

roshaughnessy

Posted by @roshaughnessy, Jun 27, 2013

There is excellent advice in this video of thinking of the exact needs of the patients , as the problem is in between hospital appointment managing a serious health condition. Social Media used correctly is a fantastic tool to help keep people informed and educated about health.

Click to view http://socialmediaforbusinesses.co/

Louise Kall likes this
carolynthomas

Posted by @carolynthomas, Jun 28, 2013

Thanks for this, Lee. I've just completed the survey and Tweeted the link as well. This is tremendously important work that Dr. Montori and his team are undertaking on behalf of all people living with one or more chronic diagnoses. When I first learned of this project, my first reaction was intense relief - relief that somebody out there (and even better - doctors out there!) actually "get" what this burden of treatment is all about.
regards,
C.

steph23

Posted by @steph23, Jul 11, 2013

This was so refreshing to see. As a heart disease survivor, I could relate to all the "complications" & even the inconvenience of care. Even though I coordinate 2 "physical" support groups, I am learning the value of social media, as supoort groups aren't for everyone. will take the survey & pass it on! Thank you!

Louise Kall likes this
kalllouise

Posted by @kalllouise, Jul 21, 2013

I was diagnosed with Fibromyalgia in 2003. I also suffer from ME, Irritable Bowel Syndrome, Allergies and Asthma. Trying to live whilst being chronically ill is very difficult! Thank you so much for being aware and for caring!
Sincerely, Louise Kall.

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