Patient Involvement

October 13th, 2017

Blogging Gives Patients Freedom of the Press— and That’s Freedom to Be Heard

By ePatientDave epatientdave

Editor’s Note: This essay is part of our weekly #TimeLessWisdom series, in which we’re highlighting one of the contributions from our 2012 book, Bringing the Social Media Revolution to Health Care. Learn more about the series. American journalist A. J. Liebling famously said, “Freedom of the press is guaranteed only to those who own one.” Blogging gives you one. It’s not […]

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Tags: #FlashbackFriday, #TimelessWisdom, blogging


September 27th, 2017

Online support group informs, uplifts ICU survivors

By Robin Huiras-Carlson robinh

Nearly nine days in spring 2016 are missing from Muriel Hachfeld’s memory. It’s the period of time she spent in the ICU at Mayo Clinic Hospital — Rochester, Methodist Campus, fighting off a septic infection she’d developed following an elective surgery. Six of those days, she fell into a coma and was unresponsive to stimuli. […]

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Tags: ICU, Mayo Clinic Connect, patient support groups, PICS


July 7th, 2017

How should we deal with mobile video in the exam room?

By Lee Aase, Director, Mayo Clinic Social Media Network LeeAase

Mayo Clinic CEO John Noseworthy, M.D. conducts a regular early morning phone conference call with Mayo staff to highlight issues of interest and concern to Mayo physicians. Farris Timimi, M.D., our Medical Director for the Mayo Clinic Social Media Network, was a guest on yesterday’s Morning Rounds call, discussing the phenomenon of patients using mobile phones […]

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Tags: Facebook Live, Facetime, Skype, video


April 10th, 2017

Webinar: Physicians, Patients & Rare Diseases on Social Media

By Dan Hinmon, MCSMN Director DanHinmon

On July 26, 2016, we hosted a webinar with Dr. Joseph Dearani, chair of the Division of Cardiovascular Surgery at Mayo Clinic, and a patient, Cynthia Burstein Waldman. Although our webinars are generally limited to premium members, we open three webinars each year to basic members and the public as well. This webinar was one of the […]

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Tags: Cynthia Burstein Waldman, Dr. Joseph Dearani, Facebook, Lee Aase, rare diseases, webinar


March 23rd, 2016

A Colorectal Cancer Conversation on Facebook Live

By Lee Aase, Director, Mayo Clinic Social Media Network LeeAase

In keeping with our colorectal cancer awareness efforts, we hosted a conversation yesterday with Mayo Clinic surgeon Heidi Nelson, M.D. on Facebook Live. Here it is, in case you missed it: Mayo Clinic expert shares 5 things to know about #colorectalcancer Posted by Mayo Clinic on Tuesday, March 22, 2016 Because the Facebook embedded player […]

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Tags: colorectal cancer, Facebook Live


March 23rd, 2016

Health Care Superheroes Can Stop Patients From Peeing Blue

By Ronald Petrovich ronaldpetrovich

“I am the fastest man alive … An accident made me the impossible,” says Barry Allen in the opening of The CW’s TV series, “The Flash.” Superhero Jessica Jones, now a Netflix sensation, gained flight and unearthly strength after an accident with chemicals. My mishap with synthetic substances was not as dramatic as The Flash […]

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Tags: Colleen Young, Cynthia Waldman, HCM, HCM Association, hypertrophic cardiomyopathy, Lisa Salberg, Mayo Clinic, Ron Petrovich, Social Media, testicular cancer


November 5th, 2015

The Right Way and Wrong Way to Manage Patient Criticism Online

By Jeff Segal jeffsegal

Understatement: Not all patients will be happy with their doctors. Years ago, this problem was local and ephemeral. Today, criticism spreads online and has longevity; posing a problem and providing an opportunity. The problem is obvious. The opportunity is turning a negative online stab into a positive presence. Let’s examine two case studies; one illustrating […]

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