Patient Involvement

The drip-drip-dripping of the sink in the radiology room echoed loudly in my brain as I waited for the pathologist. I just had a biopsy done for two spots on my neck—one suspected to be cancerous. “A nodule,” my primary care physician had previously explained at my annual physical. The [...]

By Carly Flumer • August 2, 2019

My brain swirled as I waited on the surgery table for my colectomy, the removal of the entire large intestine. I told the anesthesiologist I was ready for him to start the sedation, knowing this is an irreversible surgery, but also knowing I would come out with a new life. [...]

By Sneha Dave • May 3, 2019
My dogs and I prepare to head out for a walk in the forest. They’re excited–which makes it challenging for me to put their visibility vests on them. My anger instantly swells out of proportion; I growl, move abruptly. The instant I’m short-tempered with them, I simultaneously [...]
By Rebecca Wallick • April 5, 2019
For many people, sharing about their health online overrides conventional concerns about privacy. Each person weighs the benefits and risks arriving at their own “privacy calculus”. Patients and caregivers who share about their health in online communities told me that they agree with [...]
By Colleen Young, Connect Director • January 15, 2019
The Experts by Experience series features columns—Knowledge Translation–by guest authors who underscore the need for building an engaging, collaborative health care culture. Knowledge Translation columnists include health care leaders, clinicians, researchers, and marketing and communication professionals who translate the importance of integrating first-hand experiences of patients and caregivers, in ways that are meaningful and relevant, to engage and expand the dialogue [...]
By Farris Timimi MD, Medical Director, Mayo Clinic Social Media Network • December 14, 2018
On a cold dismal Wednesday afternoon, I found myself sitting at the children’s hospital for the third day that week. My two-year-old was throwing a huge fit because he wasn’t allowed into the therapy pool where my daughter was having a session with her physical therapist. My nine-year-old [...]
By Erin Moriarty Wade • December 7, 2018
The Experts by Experience series features columns—Knowledge Translation–by guest authors who underscore the need for building an engaging, collaborative health care culture. Knowledge Translation columnists include health care leaders, clinicians, researchers, and marketing and communication professionals who translate the importance of integrating first-hand experiences of patients and caregivers, in ways that are meaningful and relevant, to engage and expand the dialogue [...]
By Pamela Ressler • November 30, 2018