Patient Involvement

February 2, 2018

Kindness at the Margins for Caregivers – Experts by Experience

By Renata Louwers renatalouwers

With age, most of us realize the value of a solid night’s sleep, good nutrition, and exercise. We come to understand that this self-care greatly impacts how we feel, function, and perceive events around us. This is exponentially true for family caregivers of a person facing a terminal illness. Life as a caregiver to a […]

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Tags: caregivers, experts by experience

January 30, 2018

Experts by Experience – What Patient Narratives Tell Us

By Kanaaz Pereira kanaazpe

The world is shaped by stories. As experts in our own lives, we all have something to share, and the pivotal role of shared experiences has been well-established in improving health outcomes. On February 2, Mayo Clinic, and health care social network Inspire will launch “Experts by Experience” – a series of articles written by […]

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Tags: experts by experience, Patient Experience, patient stories, storytelling

October 27, 2017

Mayo Clinic Piano Duo Still Bringing Joy to Thousands

By Lee Aase, Director, Mayo Clinic Social Media Network LeeAase

A nine-year-old video of a piano duet at Mayo Clinic by then-octogenarians Marlow and Frances Cowan of Ankeny, Iowa has gone viral. Again. At about noon yesterday I received an email from our MCSMN Medical Director, Dr. Farris Timimi, an avid Reddit user, that someone posted the YouTube link to Reddit just an hour earlier […]

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Tags: reddit, YouTube

October 13, 2017

Blogging Gives Patients Freedom of the Press— and That’s Freedom to Be Heard

By ePatientDave epatientdave

Editor’s Note: This essay is part of our weekly #TimeLessWisdom series, in which we’re highlighting one of the contributions from our 2012 book, Bringing the Social Media Revolution to Health Care. Learn more about the series. American journalist A. J. Liebling famously said, “Freedom of the press is guaranteed only to those who own one.” Blogging gives you one. It’s not […]

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Tags: #FlashbackFriday, #TimelessWisdom, blogging

September 27, 2017

Online support group informs, uplifts ICU survivors

By Robin Huiras-Carlson robinh

Nearly nine days in spring 2016 are missing from Muriel Hachfeld’s memory. It’s the period of time she spent in the ICU at Mayo Clinic Hospital — Rochester, Methodist Campus, fighting off a septic infection she’d developed following an elective surgery. Six of those days, she fell into a coma and was unresponsive to stimuli. […]

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Tags: ICU, Mayo Clinic Connect, patient support groups, PICS

July 7, 2017

How should we deal with mobile video in the exam room?

By Lee Aase, Director, Mayo Clinic Social Media Network LeeAase

Mayo Clinic CEO John Noseworthy, M.D. conducts a regular early morning phone conference call with Mayo staff to highlight issues of interest and concern to Mayo physicians. Farris Timimi, M.D., our Medical Director for the Mayo Clinic Social Media Network, was a guest on yesterday’s Morning Rounds call, discussing the phenomenon of patients using mobile phones […]

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Tags: Facebook Live, Facetime, Skype, video

April 10, 2017

Webinar: Physicians, Patients & Rare Diseases on Social Media

By Dan Hinmon, MCSMN Director DanHinmon

On July 26, 2016, we hosted a webinar with Dr. Joseph Dearani, chair of the Division of Cardiovascular Surgery at Mayo Clinic, and a patient, Cynthia Burstein Waldman. Although our webinars are generally limited to premium members, we open three webinars each year to basic members and the public as well. This webinar was one of the […]

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Tags: Cynthia Burstein Waldman, Dr. Joseph Dearani, Facebook, Lee Aase, rare diseases, webinar

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