Experts by Experience

August 2, 2019

When the Fearful become Fearless – Experts by Experience

By Carly Flumer carlyflumer

The drip-drip-dripping of the sink in the radiology room echoed loudly in my brain as I waited for the pathologist. I just had a biopsy done for two spots on my neck—one suspected to be cancerous. “A nodule,” my primary care physician had previously explained at my annual physical. The radiologist had comforted me, casually […]

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Tags: cancer, thyroid

July 19, 2019

Hope for the Best, and Plan for the Worst–Experts by Experience

By Allan Butler butler3222

Life, as I knew it, was crashing down. I was sitting with my wife in the oncologist’s office and had just been diagnosed with stage 4 pancreatic cancer. But, I was about to experience some of the most optimistic and hopeful words I had ever heard. My doctor could have told me about the bleak […]

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Tags: cancer

July 5, 2019

If Remission is the Goal, Why Do I Still Feel Bad? Experts by Experience

By meganstarshak meganstarshak

Everyone always talks about being sick. My life took an unexpected turn after I was diagnosed with inflammatory bowel disease (IBD). I was lost, trying to navigate the nature of this new disease, this new identity, in a new college where no one seemed to understand. So, when I found a community of patients, I […]

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Tags: IBD, remission

June 21, 2019

A Good Night’s Sleep – Experts by Experience

By John, Volunteer Mentor johnbishop

I was diagnosed with lymphedema last year, while undergoing treatment for pain and swelling issues with my right ankle, knee, and leg. After going over the examination and test results, the doctor asked me about my sleep quality and habits. I didn’t think much about it at the time—I was more concerned about the lymphedema, […]

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Tags: CPAP, Mayo Clinic Connect, sleep, sleep apnea

June 7, 2019

Hope: A Strategy for Managing Chronic Disease–Experts by Experience

By tunaturns tunaturns

Time is one of the most priceless gifts we all have, but which can be robbed in an instant from those of us with chronic illness and disease. From diagnosis and prognosis, to the time it takes to cope with symptoms, we are instantly required to shift our thinking to managing our time. Our priorities […]

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Tags: chronic illness, diabetes, Kristina (Wolfe) Figueroa

May 17, 2019

Accidental Path to a Cancer Cure – Experts by Experience

By Martin Jensen, Volunteer Mentor predictable

Incontinence was a major problem for me 15 years ago. Guiding my cousins around the National Mall in Washington D.C. one day, I had to find a restroom for urinary relief several times. Later, we remembered that my father had developed incontinence from benign prostatic hypertrophy or BPH—overgrowth of the prostate—in his 70s. It seemed […]

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Tags: cancer

May 3, 2019

Don’t Forget Us! Young Adults with Invisible Illness – Experts by Experience

By Sneha Dave ssdave

My brain swirled as I waited on the surgery table for my colectomy, the removal of the entire large intestine. I told the anesthesiologist I was ready for him to start the sedation, knowing this is an irreversible surgery, but also knowing I would come out with a new life. I was 13. I thought […]

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