Experts by Experience

February 15, 2019

One of a Kind-When Your Child has a Condition with No Name – Experts by Experience

By bobigelow bobigelow

Today, I’m spending the day with my daughter, Tess. She’s nine years old. Since Tess’s birth, my wife and I have drastically redefined our lives. We have simplified our working lives in order to make room for medical appointments, sessions with specialists, and educational meetings. We’ve connected with a group of diehard friends and relatives—people […]

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February 1, 2019

How Cancer Opened New Doors for Me – Experts by Experience

By John Fisher jcfisher2005

At the age of 42, with my wife who was not quite 40 yet, we had become used to the questions that couples without children get from family, friends, and strangers. We were at peace and confident in our decision to remain childless. Of course, without a prostate, that decision was as final as could […]

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January 18, 2019

An Ear for the Unsaid: The Importance of Hearing What is Not Said by Patients

By Monica St Claire monicastclaire

From time to time, the Experts by Experience series features columns–Knowledge Translation–by guest authors who underscore the need for building an engaging, collaborative health care culture. Knowledge Translation columnists include health care leaders, clinicians, researchers, and marketing and communication professionals who translate the importance of integrating first-hand experiences of patients and caregivers, in ways that are meaningful and relevant, to engage and expand the dialogue on patient experience. “The […]

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January 15, 2019

Shifting the “Privacy Calculus” for the Patients Online

By Colleen Young, Connect Director colleenyoung

For many people, sharing about their health online overrides conventional concerns about privacy. Each person weighs the benefits and risks arriving at their own “privacy calculus”. Patients and caregivers who share about their health in online communities told me that they agree with Alan Westin’s concept of privacy: The right to privacy is the individual’s […]

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Tags: Online community, patient community, patient data, privacy, security


January 4, 2019

Threads of Connection – Experts by Experience

By Amy Camie amycamieharp

Everything we do creates energetic, invisible links joining us together–threads of connection. Be it a smile, a gentle touch, or a grumpy mood, our feelings affect those around us.  And whether you’re a medical professional, service provider, patient, or caregiver, you have the power to transform any health care encounter into one of comfortable, compassionate […]

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Tags: Patient Experience


December 14, 2018

Message in a Bottle? What Lost Rubber Ducks in the Ocean Can Teach Us About Patient Care

By Farris Timimi MD, Medical Director, Mayo Clinic Social Media Network FarrisTimimi

The Experts by Experience series features columns—Knowledge Translation–by guest authors who underscore the need for building an engaging, collaborative health care culture. Knowledge Translation columnists include health care leaders, clinicians, researchers, and marketing and communication professionals who translate the importance of integrating first-hand experiences of patients and caregivers, in ways that are meaningful and relevant, to engage and expand the dialogue on patient experience. Over a quarter of a […]

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December 7, 2018

Surviving, Then Thriving – Experts by Experience

By Erin Moriarty Wade emoriartywade

On a cold dismal Wednesday afternoon, I found myself sitting at the children’s hospital for the third day that week. My two-year-old was throwing a huge fit because he wasn’t allowed into the therapy pool where my daughter was having a session with her physical therapist. My nine-year-old son was walking home alone from school, […]

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