Experts by Experience

June 7, 2019

Hope: A Strategy for Managing Chronic Disease–Experts by Experience

By tunaturns tunaturns

Time is one of the most priceless gifts we all have, but which can be robbed in an instant from those of us with chronic illness and disease. From diagnosis and prognosis, to the time it takes to cope with symptoms, we are instantly required to shift our thinking to managing our time. Our priorities […]

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Tags: chronic illness, diabetes, Kristina (Wolfe) Figueroa

May 17, 2019

Accidental Path to a Cancer Cure – Experts by Experience

By Martin Jensen, Volunteer Mentor predictable

Incontinence was a major problem for me 15 years ago. Guiding my cousins around the National Mall in Washington D.C. one day, I had to find a restroom for urinary relief several times. Later, we remembered that my father had developed incontinence from benign prostatic hypertrophy or BPH—overgrowth of the prostate—in his 70s. It seemed […]

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Tags: cancer

May 3, 2019

Don’t Forget Us! Young Adults with Invisible Illness – Experts by Experience

By Sneha Dave ssdave

My brain swirled as I waited on the surgery table for my colectomy, the removal of the entire large intestine. I told the anesthesiologist I was ready for him to start the sedation, knowing this is an irreversible surgery, but also knowing I would come out with a new life. I was 13. I thought […]

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April 24, 2019

Experts By Experience Free E-Book Released

By Lee Aase, Director, Mayo Clinic Social Media Network LeeAase

If You Were in my Shoes…Stories That Teach The online patient community, Mayo Clinic Connect, together with health care social network Inspire, have compiled in a free e-book a collection of patient stories — words of wisdom — published in the Experts by Experience series on the Mayo Clinic Social Media Network in 2018. The […]

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Tags: #PatientStories

April 19, 2019

Stopped in My Tracks – Experts by Experience

By Merry, Volunteer Mentor merpreb

Almost five years ago, I was diagnosed with post-traumatic stress disorder–PTSD. In hindsight, my symptoms began years earlier, after my second diagnosis of lung cancer. I learned that cancer was a huge trigger for my PTSD, and it explained my depression and anxiety, the withdrawal and constant irritability. I was a cat who was cornered, […]

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Tags: #LungCancer, #PTSD

April 5, 2019

My Leaky Life: Learning to Live with Chronic CSF Leaks – Experts by Experience

By Rebecca Wallick wallickr

My dogs and I prepare to head out for a walk in the forest. They’re excited–which makes it challenging for me to put their visibility vests on them. My anger instantly swells out of proportion; I growl, move abruptly. The instant I’m short-tempered with them, I simultaneously recognize it and back down, asking myself, “Who […]

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March 15, 2019

Stories: The Journey to Utopia – Experts by Experience

By Victor M. Montori manosin

From time to time, the Experts by Experience series features columns–Knowledge Translation–by guest authors who underscore the need for building an engaging, collaborative health care culture. Knowledge Translation columnists include health care leaders, clinicians, researchers, and marketing and communication professionals who translate the importance of integrating first-hand experiences of patients and caregivers, in ways that are meaningful and relevant, to engage and expand the dialogue on patient experience. Galeano, […]

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