Experts by Experience

April 19, 2019

Stopped in My Tracks – Experts by Experience

By Merry, Volunteer Mentor merpreb

Almost five years ago, I was diagnosed with post-traumatic stress disorder–PTSD. In hindsight, my symptoms began years earlier, after my second diagnosis of lung cancer. I learned that cancer was a huge trigger for my PTSD, and it explained my depression and anxiety, the withdrawal and constant irritability. I was a cat who was cornered, […]

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Tags: #LungCancer, #PTSD


April 5, 2019

My Leaky Life: Learning to Live with Chronic CSF Leaks – Experts by Experience

By Rebecca Wallick wallickr

My dogs and I prepare to head out for a walk in the forest. They’re excited–which makes it challenging for me to put their visibility vests on them. My anger instantly swells out of proportion; I growl, move abruptly. The instant I’m short-tempered with them, I simultaneously recognize it and back down, asking myself, “Who […]

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March 15, 2019

Stories: The Journey to Utopia – Experts by Experience

By Victor M. Montori manosin

From time to time, the Experts by Experience series features columns–Knowledge Translation–by guest authors who underscore the need for building an engaging, collaborative health care culture. Knowledge Translation columnists include health care leaders, clinicians, researchers, and marketing and communication professionals who translate the importance of integrating first-hand experiences of patients and caregivers, in ways that are meaningful and relevant, to engage and expand the dialogue on patient experience. Galeano, […]

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March 1, 2019

Living Life on Pause – Experts by Experience

By Gabrielle Lopez, MPH glopezmph

March 2016–a seemingly ordinary day, but I remember feeling that something wasn’t quite right. Throughout the day I’d been nursing a headache, with no sign of relief. That evening, standing in my kitchen, I felt an explosion of pain inside my skull. The feeling was indescribable! I realized I needed help as thoughts came slowly […]

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February 15, 2019

One of a Kind-When Your Child has a Condition with No Name – Experts by Experience

By bobigelow bobigelow

Today, I’m spending the day with my daughter, Tess. She’s nine years old. Since Tess’s birth, my wife and I have drastically redefined our lives. We have simplified our working lives in order to make room for medical appointments, sessions with specialists, and educational meetings. We’ve connected with a group of diehard friends and relatives—people […]

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February 1, 2019

How Cancer Opened New Doors for Me – Experts by Experience

By John Fisher jcfisher2005

At the age of 42, with my wife who was not quite 40 yet, we had become used to the questions that couples without children get from family, friends, and strangers. We were at peace and confident in our decision to remain childless. Of course, without a prostate, that decision was as final as could […]

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January 18, 2019

An Ear for the Unsaid: The Importance of Hearing What is Not Said by Patients

By Monica St Claire monicastclaire

From time to time, the Experts by Experience series features columns–Knowledge Translation–by guest authors who underscore the need for building an engaging, collaborative health care culture. Knowledge Translation columnists include health care leaders, clinicians, researchers, and marketing and communication professionals who translate the importance of integrating first-hand experiences of patients and caregivers, in ways that are meaningful and relevant, to engage and expand the dialogue on patient experience. “The […]

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