Community Development

June 11, 2019

Remarkable opportunity to make a profound difference

By Dan Hinmon, MCSMN Director DanHinmon

When our first daughter Eliza was born she was absolutely beautiful and seemed perfect in our eyes. After about a week her skin became sallow. We suspected jaundice, so we did what every good parent did at the time in these cases. We stripped off her clothes and placed her safely on the window ledge, […]

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Tags: Community Development, rare diseases


March 22, 2019

MCSMN Welcomes New Silver Fellow – Katherine Brown, Ed.D., from Meharry Medical College

By Audrey Laine Seymour, Senior Communications Specialist audreylaine

Congratulations to Dr. Katherine Brown on becoming a Silver Fellow! In early 2018, Katherine created a social media plan to increase staff utilization of social media and to improve communication with stakeholders. The strategy outlined an approach to provide training for staff to learn about Twitter and create personal accounts that they’ll maintain. She became a […]

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January 15, 2019

Shifting the “Privacy Calculus” for the Patients Online

By Colleen Young, Connect Director colleenyoung

For many people, sharing about their health online overrides conventional concerns about privacy. Each person weighs the benefits and risks arriving at their own “privacy calculus”. Patients and caregivers who share about their health in online communities told me that they agree with Alan Westin’s concept of privacy: The right to privacy is the individual’s […]

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Tags: Online community, patient community, patient data, privacy, security


April 6, 2018

3 Things We Learned from ‘Men’

By Audrey Laine Seymour, Senior Communications Specialist audreylaine

National Doctor’s Day is held each year on March 30 in the U.S. Last year, we decided to have a post about the day, celebrating and thanking physicians. We posted this on Facebook, Instagram, and Twitter, and it was one of the week’s highest performing posts on each platform. Here’s to those who pursue the ever-changing […]

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March 2, 2018

Multiple Sclerosis, Illusions, and “Working Understandings” – Experts by Experience

By Gil Greenman gilgreenman

Living with a chronic illness often means confronting your denial. I lived for eight years with multiple sclerosis (MS), thinking that my brain was beyond having new lesions. This was because I was taking a powerful drug called Tysabri. All my MRIs showed no new lesions.  However, my disease did progress, and I moved from walking […]

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Tags: experts by experience, MS, patient story


February 12, 2018

Why Take the Social Media Basics for Healthcare Training

By Taryn Offenbacher, Senior Communications Specialist toffenbacher

You may have seen the online Social Media Basics for Healthcare Certificate training on the Mayo Clinic Social Media Network. This course was developed by Mayo Clinic in collaboration with Hootsuite, a social media management platform. The training was developed for YOU– a busy professional looking for the most concise resources to help you get […]

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Tags: certification, courses, lesson, Training


February 2, 2018

Kindness at the Margins for Caregivers – Experts by Experience

By Renata Louwers renatalouwers

With age, most of us realize the value of a solid night’s sleep, good nutrition, and exercise. We come to understand that this self-care greatly impacts how we feel, function, and perceive events around us. This is exponentially true for family caregivers of a person facing a terminal illness. Life as a caregiver to a […]

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Tags: caregivers, experts by experience


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